“Rare Mamas is a heartfelt and practical guide that offers clarity, strength, and unwavering support for parents facing the overwhelming journey of rare disease. The author is incredibly well-spoken and relatable, drawing from lived experience and deep empathy to speak directly to the hearts of caregivers. With compassion and wisdom, she shares empowering strategies that help mothers feel less alone, more equipped, and grounded in their inner strength as they advocate for their children. This book is a must-read companion for any parent navigating this complex path.”

Carol Gelbard, LCSW, psychotherapist and former director of emotional wellness at the Neuromuscular Disease Foundation