Empowering Rare Moms—Strategies, Strength, Support & Sisterhood.
1. Having the knowledge, confidence, means, or ability to do things
2. Making (someone) stronger and more confident
Rare Diseases
0
+
million people worldwide with a rare disease
100
million U.S. children with a rare disease
1
of patients diagnosed with a rare disease are children
1
%
Hi, I'm Nikki, a rare mom just like you!
Raising my son Miles, who lives with a rare disease, opened my eyes to the glaring gaps in information and support for moms like us—and lit a fire in me to do something about it. I created Rare Mamas® to empower rare moms with strategies, strength, support, and sisterhood.
It is my deepest hope that I can share what I’ve learned to help make the road a little easier for you. When we stand beside one another, we rise stronger. That’s the heart of Rare Mamas.
It would be a privilege and honor to walk alongside you. Together, we rise!
In it together,
Nikki