“Rare Mamas is the book I wish I’d had when my daughter got her diagnosis, when I was feeling overwhelmed, when I was scared, and when I felt isolated. Nikki shares so much wisdom in the voice of a trusted guide, who’s also a cheerleader and best friend. Knowing there are others traveling a similar path provides the dose of courage we all need when our worlds are turned upside down by a rare disease diagnosis. From practical strategies to emotional support, Rare Mamas is an indispensable manual to refer to when you need a compassionate guide who truly understands. This book doesn’t just offer solutions—it offers validation, inspiration, and the reassurance that even in the rarest of journeys, you are never alone.”

Jessica Fein, author of Break Taking: A Memoir of Family, Dreams, and Broken Genes and host of the podcast “I Don’t Know How You Do It”