“Rare Mamas provides practical advice and a heavy dose of hope to parents and caregivers new to the rare-disease journey, as well as those who are many years in. Nikki gives voice to the experience of so many of us, providing a sense of camaraderie and belonging in a space where aloneness can feel overwhelming. She embodies grace, humor, strength, persistence, and unlimited hope in her life and in the Rare Mamas community. Thanks to Nikki for creating this safe space to learn, grow, connect, share, feel, and heal.”

Stacey Walthers Naffah Director, Children’s Wisconsin Foundation Board, Childhood Cancer Advocate, Mama to a Childhood Rare Cancer Survivor