“Ms. McIntosh was invited as a panelist for the topic “The ABCs of Advocating for Your Child’s Education” at the 2021 Living Rare, Living Stronger NORD Patient and Family Forum. Parents of children living with rare diseases are often seeking applicable advice with actionable tips, and Nikki came prepared with both. The key takeaways were actionable for participants of this session, and the feedback from participants was positive with 100% of evaluation respondents strongly agreeing to the statement “The speakers were knowledgeable and shared information in a clear, understandable way” and 100% agreeing that the session met the learning objective.”

Rebecca Aune, MPA, Director of Education Programs, National Organization for Rare Disorders