“Nikki’s warm, welcoming, impassioned and pragmatic approach to connecting with the rare community, all while sharing her own personal experiences is the hallmark of her effort to inspire resiliency among the parents of children diagnosed with rare diseases. True to form, her proactiveness in working to encourage parents to meet their trials head-on and her ability to find a light in the darkness was so well received by our group that we’ve asked her to speak to a wider audience at our upcoming Annual Family Conference.”

Becky Benson, NTSAD Conference and Family Services Coordinator, and Rare Mama