“Rare Mamas is the anchor and compass parents need after receiving a life-changing diagnosis for their child. There hasn’t been a roadmap to deal with such complexities . . . until now. It offers the vital guidance, unwavering support, and a deep understanding that will empower you to navigate the unique and challenging journey of rare. Rare Mamas isn’t just a book—it’s the lifeline you’ve been desperately searching for.”

Brittany Cocilova, supervising producer of the series Behind the Mystery: Rare and Genetic Disease