“Nikki McIntosh is a powerful voice in the community of rare parents, caregivers and advocates. She speaks with polish and passion. She easily connects to those who have lived a similar experience as well as those who may need to better understand a world of complex medical needs they can hardly imagine. I plan to continue to invite her to share her knowledge and perspective at future Global Genes events.”

Daniel DeFabio, Director of Community Engagement, Global Genes