“If your child has been diagnosed with a rare disease, the first thing on your to-do list should be to read Rare Mamas. As a mom of an exceptionally rare child, it took me years to amass the knowledge that you will gain in a few hours of reading Rare Mamas. Even more important than the knowledge you will glean, is the sense of hope that so many warrior parents are looking for during our battle for the best possible life for our children! It is possible, and I’m so honored to have Nikki as a champion in my corner to cheer me on!”

Rachel Niemeyer-Sutherland, Special Education Community Advisory Committee Chair CUSD, Special-Needs Advocate, Mama to Princess Sophia-RARB Warrior