“This powerful book is a carefully curated guide to helping mothers understand life with a child who has received an existence-altering diagnosis. The author approaches this topic from a personal standpoint, providing real-life examples from their own experience of raising a child living with a severe, rare disease. The advice in this book blends research, personal testimony, experience, as well as faith-based insights. This book is a must-read not only for parents but also for family members and even the general public.”

Nicole Yurcaba,  The US Review of Books