24Feb
Welcome to The Rare-Mama Sisterhood: Rare-Disease MoMS United
This community of rare-disease moms wants to tell you that you are not alone and you are more powerful and capable than you know.
Start Here
22Oct
Rare Disease Parenting: I See You, Friend
Did you just receive news that your child has been diagnosed with a rare disease? You are not alone.
21Oct
Holding a Candle in the Rare-Disease DIAGNOSIS Darkness
Offering support to mothers coming to grips with a rare-disease diagnosis for their child.
21Sep
The Fight of Our Lives: Fighting For Children With a Rare Disease
This might be the greatest fight you’ve ever had to fight but it doesn’t have to break you.
03Aug
Rare-Disease Mindset: Shifting From Distress to Prowess
Changing your mindset from fear to bravery has the power to change the course of your rare-disease fight.
20Jul
The 6 Things You Need to Begin Your Rare-Disease Fight
So what do you do when faced with something so monumental? Where do you begin?
22Jun
Stages of a Rare-Disease Diagnosis
Shining light on the various stages and emotions parents experience after their child’s rare-disease diagnosis.