A few thoughts about the power of taking time to pause and reflect on the lives we want to live and the people we want to be as we head into the new year.
Hi, I’m Nikki, a rare-disease mom just like you. My son Miles was diagnosed with spinal
muscular atrophy (SMA), a rare, neuromuscular disease at the age of eighteen months old. I was thrown into a match I never expected. My inner
fighter was awoken. I believe that, like me, you have a brave fighter within you. I want to help you approach the rare-disease journey with bold courage, fearless faith, and unrelenting hope. I want to create a community of brave rare mamas supporting one another. Let's awaken your inner fighter and rise up!