22Apr
A “Rare bond”: Connecting with Cystinosis
Rare mamas Shirley Dicks and Tori Westfall share the connection they formed raising daughters with Cystinosis, and why they believe rare moms are better together.
Rare Mamas Rising
25Mar
My Story by Jamie McAnelly
Rare Mama Jamie shares the
diagnostic journey for her sons Murray and Meyer with X-Linked Adrenoleukodystrophy, and the organization they've created to X out ALD.
24Mar
Eli’s Story by Mom Meital Benari
Rare Mama Meital Benari shares their family's brave and ongoing fight to get a diagnosis for their 10-year old son Eli and the life lessons they've learned along the way.
21Mar
Hudson’s Story BY Mom Kaley Branch
Rare Mama Kaley shares her son Hudson Cash's congenital adrenal hyperplasia (CAH) diagnosis story, their new way of life, and the positivity they instill in Hudson.
25Feb
MUM ON A MISSION BY BOnnie Jackson
Rare Mama Bonnie is a mum on a mission raising Vascular Ehlers Danlos Syndrome awareness for her daughter Mia and other families affected by VEDS.
25Feb
My Story by Tanya Bland
Rare Mama Tanya shares her daughter Kaylee's long journey to an extremely rare diagnosis of a genetic mutation on the IRF2BPL gene, and how their family chooses to look for the joy in life.
25Feb
My Story by Carole Harrison
Rare Mama Carole Harrison shares her journey with her daughter Elise who has Subcortical Band Heterotopia and how Elise defines strong!
25Feb
My Story by Maggie Moore
Rare Mama Margaux shares the story of her daughters SMA diagnosis and how she now uses her time to help other families affected by SMA.
