25Feb
My Story by Ashley Bristow
Ashley Bristowe, author of My Own Blood: A Memoir, shares her real and raw account of raising her son Al, with rare genetic disorder Kleefstra Syndrome.
Rare Mamas Rising
25Feb
My Story by Kala MCWain
Rare Mama Kala shares her son Braxton's journey with PKU, and discusses the struggles in obtaining the medical diet necessary to uphold his health.
25Feb
My Story by Elysia Camp
Rare Mama Elysia shares her daughter Leonora's journey with Panhypopituitarism and adrenal insufficiency, and highlights Leonora's happy spirit through all she's overcome.
25Feb
Eliam’s Story by Kelsey Martinez
Meet Eliam and hear his journey to a diagnosis of Dravet syndrome, and how his dedicated family advocated for him every step of the way.
24Feb
Just Like A Butterfly By Niki Markou
Rare Mama Niki Markou shares her story about her daughter Angelina's diagnosis of Lafora Disease, the very special song she wrote and sang for her daughter, and how she became involved in Chelsea's Hope Lafora Children Research Fund.
23Feb
The Avery Project By Caitlin Eppes
Rare Mama Caitlin Eppes shares her remarkable story of learning that her daughter Avery is the only person known to have a specific gene variant until they meet one other, another girl named Avery!
23Feb
Best Piece of Advice from Effie Parks
Rare Mama and Once Upon A Gene Podcast creator and host Effie Parks shares her best piece of advice and emphasizes self-care for rare moms.
23Feb
Crosby’s Cure by Sophia Phillips
Rare Mama Sophia Phillips bravely fights for a cure for her son Crosby and others with FoxG1 syndrome.
