30Nov
Ten Holiday How-To’s for The Rare Mama
The holidays are a busy time of year for any mom, especially a rare-disease mom. Here are 10 tips to keep the "merry" in this merry time of year!
Tips & Tools
18Aug
Advocating For Your Rare Child’s Education
Tips and tools to help you advocate for your child's education and form a communicative and collaborative education team!
15Jun
Summer Lovin’ & Livin’
While a welcomed break, summer can disrupt the routines. Check out these tips and resources to help keep the fun in summer!
06Apr
Ten Takeaways for Raising Rare Siblings
Check out this list of tips for raising siblings of children with rare diseases, culminated from expert reports and recommendations.
08Mar
Trusting Your Parenting Instincts
Learning to trust and honor your instincts when parenting a child with a rare disease.
13Jan
Ten TIPS To Plan For Caregiving Breaks
Simple truth: It's hard for us rare-disease moms to get a break from caregiving. So we have to take some time upfront to PLAN a little time out. Here's my list of ten tips to plan for a caregiving break.
05Jan
How to Become a Planner: Rare-Disease Planning
A step-by-step guide on how to learn planning skills that will help with the rare-disease parenting journey.
20Nov
ORGANIZING YOUR DEN
With so much important information coming at us and all the paperwork that rare disease brings, it's essential that we have an organization system in place to help!
