EP17 –  Rare Mamas Rising-Turning Pain Into Purpose with Hypophosphatasia Advocate, President of The Avalon Foundation, Life Coach & Rare Mama Deb Ayres
Rare Mamas Rising Deb Ayres

Rare Mamas Rising Episode 17

Deb Ayres, rare mama to Avalon, is a certified life coach and wellness practitioner with a degree in psychology. When Avalon was getting a crucial yet incredibly painful treatment for the rare condition Hypophosphatasia, Avalon’s grandmother gave her a pain box to support her through treatment. Avalon strongly felt that supporting children who are enduring painful treatment was vital, and the idea for The Avalon Foundation was born. Deb and Avalon built The Avalon Foundation to promote youth leadership through offering support to kids receiving life-altering treatment for rare diseases. In this episode, Deb offers not-to-be-missed ideas and insights from both her professional and personal experiences. She’s a sage shepherd guiding and leading with both wisdom and heart!

 

EPISODE HIGHLIGHTS

  • The journey to Avalon’s rare diagnosis
  • How The Avalon Foundation got started 
  • Advocating for school inclusion and pivoting to find alternative avenues
  • Avalon’s resilience and rise to advocate for herself
  • The new mindset Deb adopted and how she became empowered
  • Savvy tips for navigating rare life from a certified life coach
  • Deb’s best advice for other rare mamas (it’s one of my favorites!)

LINKS & RESOURCES MENTIONED

Deb Ayres 

DebAyres@KidsCaringForKids.org

The Avalon Foundation

https://kidscaringforkids.org/

https://www.facebook.com/theavalonfoundation

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