EP19 – Rare Mamas Rising-A Big Reason to Be Here with FOXG1 Co-Founder, Executive Director & Rare Mama Nicole Johnson

Rare Mamas Rising Episode 19

Nicole Johnson is the co-founder of the FOXG1 Research Foundation and mother to Josie, who has a severe mutation of the FOXG1 gene. The FOXG1 Research Foundation is not only accelerating research to cure FOXG1 Syndrome and brain disorders but also driving change in the rare disease landscape. Bringing more than two decades of experience in media and communications, Nicole currently serves as FOXG1 Research Foundation’s Executive Director overseeing every vertical across the organization. In this episode, Nicole’s strength of purpose blazes bright, and she speaks with firsthand knowledge about the powerful combination of science and hope. She’s a 2022 Global Genes Champion of Hope Award nominee, and she believes we are all here for a really big reason. After listening to this hope-inducing conversation, you’re sure to understand why!