EP39 – Rare Mamas Rising- Blazing Trails to Cure and Care with The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease Founder Kristen Gray
Rare Mamas Rising Kristen Gray

Kristen Gray is an extraordinary mom of four incredible children: Charlotte, Gwenyth, Callan, and Gavin. From the moment her eldest two, Charlotte and Gwenyth, were diagnosed with Batten Disease, she embarked on a courageous journey blazing trails in rare disease advocacy. She founded The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease and established The Gray Academy, a beacon of hope and education for children facing complex neurological disorders. Her unwavering dedication and pioneering spirit have been a driving force behind groundbreaking initiatives to find treatments and support families in similar situations. Join us as we delve into her inspiring story of resilience, hope, and relentless determination to change the future for her children and others.

 

Apple Podcasts
Spotify Podcasts

EPISODE HIGHLIGHTS

  • The discovery of Charlotte and Gwenyth’s Batten Disease diagnoses
  • Founding The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease
  • Development of The Gray Academy and their approach to education
  • Balancing advocacy and motherhood
  • Kristen’s vision for the future of children and families affected by neurological disorders
  • Kristen’s best learnings for other rare mamas

 

LINKS & RESOURCES MENTIONED

 

The Charlotte & Gwenyth Gray Foundation to Cure Batten Disease

The Gray Academy