EP52 – Rare Mamas Rising- Rare Mamas Book Release Day + A Special Reading from the Introduction
Today is the day! Rare Mamas book release Day! Nikki’s new book, Rare Mamas: Empowering Strategies for Navigating Your Child’s Rare Disease, is officially here. In this very special episode of Rare Mamas Rising, Nikki celebrates release day by sharing the heartfelt introduction chapter, giving you a first look at the hope, strength, and sisterhood at the heart of Rare Mamas.
This book is a lifeline for rare moms, rare disease parents, and caregivers who are navigating the overwhelming and often isolating rare disease journey—whether you’re just receiving a diagnosis or years into the caregiving trenches. Nikki’s taken her lived experiences and hard-won wisdom from over a decade and poured them into a compassionate and actionable guide to help mothers manage the complexities of rare disease parenting while finding strength, hope, and community. Inside the book, you’ll learn how to:
- Adopt the right mindset for the journey ahead
- Advocate with confidence and diplomacy
- Navigate complex medical, educational, and financial systems
- Discover practical strategies for daily challenges
- Feel capable and empowered to make decisions
- Build a circle of support you can count on
- Balance caregiving with your own well-being
- Find strength in sisterhood and shared wisdom
- Hold onto hope while facing the unknown
- Rise to the call of rare parenting
Join Nikki as she celebrates Rare Mamas book release day by reading from the introduction and talking about why she wrote the book she wished had existed when her son was first diagnosed. If you’ve ever felt unseen, overwhelmed, or unsure of the path ahead, Nikki’s hope is that this book and today’s episode provide you with strategies, strength, support, and sisterhood and empower you to rise to the call of rare parenting.
Links & Resources Mentioned:
Order the book today at the links below:
Book Info: www.raremamas.com/book
