“Nikki was the final keynote speaker at our parent science conference. Nikki took the stage and changed the energy in the room. She lightened the weight of what we heard that day through inspiration. She didn’t diminish our challenges. With depth, love, and strength, she inspired us to accept our challenges and rise. Nikki is not just a typical speaker. She is one of the great speakers of our time–the type that ignites something inside you that you didn’t know existed. She is the Martin Luther King Jr. of speakers for the rare disease community. I’m grateful our community has someone with her strength and character to lean on.”

Nasha Fitter Cofounder/CEO, FOXG1 Research Foundation Global Head, Data Platform, Invitae, Patient advocate for Amara

“Ms. McIntosh was invited as a panelist for the topic “The ABCs of Advocating for Your Child’s Education” at the 2021 Living Rare, Living Stronger NORD Patient and Family Forum. Parents of children living with rare diseases are often seeking applicable advice with actionable tips, and Nikki came prepared with both. The key takeaways were actionable for participants of this session, and the feedback from participants was positive with 100% of evaluation respondents strongly agreeing to the statement “The speakers were knowledgeable and shared information in a clear, understandable way” and 100% agreeing that the session met the learning objective.”

Rebecca Aune, MPA, Director of Education Programs, National Organization for Rare Disorders

“Nikki McIntosh is a powerful voice in the community of rare parents, caregivers and advocates. She speaks with polish and passion. She easily connects to those who have lived a similar experience as well as those who may need to better understand a world of complex medical needs they can hardly imagine. I plan to continue to invite her to share her knowledge and perspective at future Global Genes events.”

Daniel DeFabio, Director of Community Engagement, Global Genes

“I have had the opportunity to work with Nikki McIntosh not once, but twice and both times were an absolute pleasure. When we interviewed her live on the show, she was not only eloquent but extremely focused on communicating her message. Overall, Nikki would be a huge asset to any project. She is the full package with skills on how to brand, promote, and engage with audiences, all with passion and eloquence to deliver a powerful message. She is a bright light in what can be a dark world of rare diseases and empowers other women who face similar challenges to take hold of their power and fight.”

Brittany Cocilova, Sr. Writer/Producer, Behind the Mystery on Lifetime TV

Trinity Life Sciences was very fortunate to host Nikki as part of our Patient & Caregiver Speaker Series. We hold this series to connect us with the impact of our work in the life sciences. Meeting and collaborating with Nikki was a pleasure throughout the process. She is proactive, dependable, and made sure we were aligned every step of the way. She shared her and her family’s story with tremendous candor, and kept in mind the most critical information for the audience. Nikki delivered a poised yet emotional presentation that deeply impacted people across all roles and areas of Trinity. We received feedback from employees across Trinity that Nikki’s presentation left them motivated by her and her family’s strength, and re-invigorated in their daily work. It was an absolute pleasure and special opportunity to work with Nikki and hear her family’s story and about the imperative work she leads in the caregiver community.

Chiara Spain, Senior Consultant at Trinity Life Sciences 

“Nikki’s warm, welcoming, impassioned and pragmatic approach to connecting with the rare community, all while sharing her own personal experiences is the hallmark of her effort to inspire resiliency among the parents of children diagnosed with rare diseases. True to form, her proactiveness in working to encourage parents to meet their trials head-on and her ability to find a light in the darkness was so well received by our group that we’ve asked her to speak to a wider audience at our upcoming Annual Family Conference.”

Becky Benson, NTSAD Conference and Family Services Coordinator, and Rare Mama

My team had the privilege of working with Nikki McIntosh over the course of several months as she developed a truly inspiring presentation for our healthcare consulting company, Trinity Life Sciences.  The presentation itself was nothing short of exceptional. With a perfect blend of personal anecdotes and professional insights, she seamlessly navigated the complex landscape of SMA and its impact on families. The presentation was informative, engaging, and left a lasting impression on everyone in the room. The feedback received after the presentation was overwhelmingly positive. Attendees expressed gratitude for the unique perspective she brought to the table, as well as her ability to connect her story to the work that many people at our company do on daily basis. Many mentioned that her presentation had significantly increased their understanding of the human side of healthcare consulting, emphasizing the importance of empathy and patient-centered approaches. All in all, it is not every day that we get to work with such a passionate mother and caretaker, and her presentation was a standout moment for our company this year.

Avery Schuldt, Senior Consultant at Trinity Life Sciences 

Nikki’s session at our annual conference was a tremendous success. She was easy to work with during the planning process and took the time to truly understand our rare disease and the challenges our families face. She tailored her session to fit the needs of our community, and our families loved having Nikki at the conference.

Chelsey McCarthy, Executive Director, DDX3X Foundation