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Rare Mamas Rising Podcast
Rare Mamas Rising
Rare Mamas Rising is a podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Hosted by Nikki McIntosh, each episode offers heartfelt reflections, practical tools, and empowering strategies to help you rise to the call of rare disease parenting. Catch an episode of Rare Mamas Rising and walk away encouraged, uplifted, and empowered. We rise stronger when we rise together—let’s rise!
Rare Mamas Rising Podcast

PRAISE

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Just listened to my first two episodes, and I am hooked. The words of wisdom, feeling less alone and knowing there is hope out there for us, rare mamas is so needed. Thank you for providing this platform and putting this out into the world.

Cathy Oh, Rare Mama to Shawn

Love this podcast

Filled with hopeful messages, Rare Mamas Rising encourages us to tune into our intuition and keep finding hope.

Veronica McCLean, Rare Mama to Ellie

Thank you, thank you, thank you, Nikki, and the Rare Mama community! What a wonderful and welcome respite-what a gift to find such a warm and supportive community for us moms doing what others find impossible. And, to get real, practical tips to help navigate the toughest stuff. Thanks for making me and all of us feel stronger, more capable. To take what you’ve been through for the benefit of us all is generous, kind, and inspirational. Your vulnerability and humor is an oasis and a blessing. Thank you, and bravo, Rare Mamas Rising!

Apple Podcast Review

While Nikki’s understanding and gentle, she infuses each episode with these flashes of fire, of strength. Her podcast has a message for all Rare Parents that’s as clear as a ‘go’ signal: YOU GOT THIS!

Apple Review

I love this podcast – a must-listen! 

What a great podcast for every parent! Even though it’s geared toward moms that are raising chioldren with rare diseases, everyone can walk away from Nikki’s podcast with valuable information and inspiration! Nikki is witty, relatable and has an abundance of compassion, sincerity, and knowledge- and it shines in her interviews with experts in the medical industry and other rare moms. I always walk away feeling like I am better equipped to take on the obstacles and emotions we have as parents. This is a must-listen podcast!

Casey Templin

Real and Beautiful.

Rare Mamas Rising podcast is a true gem. So thoughtfully done. I’ve laughed and I’ve cried listening to these podcast episodes. I’ve learned valuable insights and feel validated in my own experiences with a rare child. Nikki is incredibly talented in her interviewing style and gives her guests a chance to be heard.

Teri Furey, Rare Mama to Beau 

I love this podcast. Nikki is always serving up inspiration for mamas. Hearing others’ stories, how they have taken their challenges and made something beautiful of them, helps me feel so hopeful!

Chardell Buchanan, Rare Mama to Ben

“The Rare Mamas Rising podcast is an incredible resource for RARE caregivers; heck, great for ALL caregivers! Nikki hosts from the heart and digs deep with her guests to bring substance and support to all her listeners.”

Deb Ayres, President, The Avalon Foundation, Rare Mama to Avalon

Every episode of Rare Mamas Rising is incredibly inspiring. If you’re looking for some inspiration and positivity, don’t miss this podcast!

Nicole Johnson, Co-Founder and President FOXG1 Research Foundation, and Rare Mama to Josie

“Nikki is a wonderful human being. She presents herself as a passionate, inspiring, relatable and empathic advocate, who is very attuned to the needs of the rare disease community. It was an honor to be a guest on her “Rare Mama” podcast. Nikki is a true gem to the rare mama community.”

Carol Gelbard, LCSW, Emotional Wellness Director Neuromuscular Disease Foundation